Posting After A Long Time- Some More Updates

Hello everyone,

Sorry I have been neglecting my blog so much recently but sometimes I don't have have the energy to write a post. It's been a few months since I posted. In May the Dr said that he was going to refer me to Royal Free Hospital for CFS/ME but because I am not in the catchment area so I would have needed the Dr to fund it so my referal got rejected. The Dr then referred me to Hillingdon Hospital and I am pleased to say that my referral went through and I saw a neurologist there, and I am now on the waiting list to see one of the Dr from the CFS/ME team. The neurologist has said that I definitely do have CFS/ME. 

Walking has become increasingly difficult and I get very breathless easily. The reason why my walking has become much harder is because my muscles are wasting because of the amount of time I sleep.  In July I went on holiday to Ayia Napa in Cyprus with my family which was really lovely especially as it was sunny and we relaxed on the beach and by our hotel pool. 

I am still learning how to pace myself but I just think to myself God must have given me this illness because I am brave enough to deal with it. 

Stay happy.

I hope to update my blog more often.

Love From Meera xx 

CFS/ME Awareness Month

Hello everyone,

This month is CFS/ME awareness month. CFS is a debilitating illness which not many people know and understand of. CFS/ME is also an invisible illness which makes it even harder for us sufferers as people think that we look fine but inside we know that we don't feel fine. Not all disabilities are visible. 

It is sad to see that many people do not believe that CFS/ME is actually an illness. Yes people can choose whether to believe if God and Santa is real but to not believe the illness  CFS/ME is real really is so devastating. CFS/ME is a real illness. I myself suffer from CFS/ME and it is not an easy illness to live with.

Here is a YouTube video which I have made to raise awareness for CFS/ME please watch it, like it and subscribe to my channel. : 
 https://www.youtube.com/watch?v=OrR7iraKsow

Love From Meera 

Just An Update

Hello everyone, 

I went to my exercise class on Tuesday last week which was fun as I got to see my friends. When I got home I was still fine but then yesterday (meaning Wednesday) I started getting extremely achy in my whole body so I slept most of the day. Today I managed to go out to the library as I need to get out of the house as it does get a bit boring when I'm sleeping all the time. 

Love From Meera xx

Positive and Negatives

Hello everyone, 

I seem to be neglecting my blog so much and I am sorry about that but I cant help it as I have CFS which makes me extremely exhausted that to type on the computer makes my fingers ache. 
At least it is the Easter holidays so I can catch up on all my sleep and just take it easy. 

Recently I have been getting weaker and weaker. After walking up the stairs I have to lie down as it walking up the stairs takes all the energy out of me. Yesterday my niece came over with my cousin and his wife. It was such a lovely day and I enjoyed playing with my niece.
Today I am just going to take it easy and just watch a DVD. A few weeks ago I went to my Dr and told him about how I am feeling and he said he is going to get me referred to a specialist CFS clinic either Royal Free Hospital or Hammersmith Hospital which I felt pleased about as I need help to manage CFS as it is a life changing illness. I used to go swimming a lot with my best friend but now I cant even manage one flight of stairs let alone swimming.

Have a lovely day and enjoy the sunny weather. 

Love From Meera xx

Just an update

Hello everyone, 

Unfortunately I have not been able to update my blog as frequently as I thought because my CFS health has been quite bad lately. I have been getting more and more aches and pains in my legs. I find it hard to deal with CFS as I don't want to be extremely tired all the time, instead I want to be active. I feel like an 80 year old as my mobility is limited which is really upsetting for me and my family as I am only 17. My parents find it hard seeing my suffer from such a debilitating illness. 

Hopefully I will try to update the blog next week depending on how I feel. 

Have a lovely evening everyone.

Love From Meera xx 

Hello everyone ,

Today is Christmas Day. I am having a get together with my family. Hopefully I won't be extremely  tired. Luckily the get together is at my house which means if I get extremely tired I can to bed. 

I wanted to wish you all a M E R R Y  C H R I S  T M A S ! Have a lovely day.

Love From Meera xx 

Today

Hey everyone,

Today I went to my Gradual Exercise Therapy in the morning which was nice as the therapist is really supportive to me. After that I came home and went to sleep for a while. Then I decided to go out with my best friend for Christmas shopping, I was still tired but my friend and I took it nice and slowly and we had a long lunch to reboost my energy. My friend deserves a massive hug for being so patience as I was extremely tired. When I got home I went for a really long sleep. Now I am just going to sit down with a hot water bottle and watch the X factor final.

I wish you all a good night. Please remember an invisible illness is extremely hard to live with as no one apart from the person suffering can know how you are actually feeling.

Love from Meera xx